Engaging Consumers in Health Research
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We are transforming how research improves patient outcomes to meet the needs of our community
Sydney Health Partners has established a strategic partnership with Health Consumers NSW (HCNSW). We are working together to increase the capacity of researchers and consumers to work together within health and medical research.
A scoping review and needs assessment of consumer and community involvement across Sydney Health Partners has been completed, and has informed a series of recommendations about how SHP can foster new connections to guide the development of infrastructure and resources that support wider consumer involvement in health research.
The partnership with HCNSW has also resulted in pilot training sessions for consumers and researchers alike to improve collaboration and better equip both groups to support consumer involvement in health research.
Platform 2 is leading consumer involvement in our Cellulitis Prevention: Healthy Legs Program (HeLP), which is developing a model of care to prevent admissions and readmissions among patients with cellulitis. By working with consumers and consumer groups, we are ensuring that their perspectives are heard and incorporated into the wider project.
Working with our LHD partners and consumer advisory groups, Sydney Health Partners coordinated the development of an information brochure which promotes consumer involvement in research. Importantly, the brochure was developed by consumers as well as for consumers.
The brochure encourages members of the public to think more broadly about the ways they can be involved in health and medical research - and includes quotes from consumers who have done so.
Consumer and community involvement (CCI) is fast moving from nice to have, to must have. And while there is growing recognition of the value of genuine and meaningful engagement of consumers and the community in clinical trials, some researchers are unsure how or where to start. In response, Monash Partners Academic Health Science Centre and … Read more
Read more of the post New Event: Consumer and Community Involvement in Clinical Trials
Consumers are becoming more involved in research than ever, however both consumers and researchers need to “feel loved and supported” if consumer involvement in research is to progress in a meaningful way. So concluded Luke Escombe, consumer advocate, musician and comedian, echoing comments made by fellow consumer George Kiossoglou, in a panel discussion he chaired at the Consumers Health Forum’s virtual summit, Shifting Gears, on Thursday 18 March. “Consumer advocacy … Read more
Read more of the post More Support Needed to Foster Meaningful Consumer Involvement in Research
Sydney Health Partners has teamed up with hospital consumer groups to produce a unique brochure which encourages consumer involvement in health and medical research. The brochure outlines the common steps in the research process and shows the many ways consumers can work with researchers to improve healthcare in Australia. Co-produced by consumers, researchers and communications … Read more
Read more of the post Demystifying the Health Research Experience for Consumers