Capacity Building in NSW

Sydney Health Partners has established a strategic partnership with Health Consumers NSW (HCNSW). We are working together to increase the capacity of researchers and consumers to work together within health and medical research.

A scoping review and needs assessment of consumer and community involvement across Sydney Health Partners has been completed, and has informed a series of recommendations about how SHP can foster new connections to guide the development of infrastructure and resources that support wider consumer involvement in health research.

The partnership with HCNSW has also resulted in pilot training sessions for consumers and researchers alike to improve collaboration and better equip both groups to support consumer involvement in health research.

Cellulitis Prevention: Healthy Legs Program (HeLP)

Platform 2 is leading consumer involvement in our Cellulitis Prevention: Healthy Legs Program (HeLP), which is developing a model of care to prevent admissions and readmissions among patients with cellulitis. By working with consumers and consumer groups, we are ensuring that their perspectives are heard and incorporated into the wider project.

Encouraging Consumer Interest in Research

Working with our LHD partners and consumer advisory groups, Sydney Health Partners coordinated the development of an information brochure which promotes consumer involvement in research.  Importantly, the brochure was developed by consumers as well as for consumers.

The brochure encourages members of the public to think more broadly about the ways they can be involved in health and medical research - and includes quotes from consumers who have done so.

What Consumers Say

In 2016, Sydney Health Partners conducted focus group discussions with volunteers from our health service partners’ consumer networks. The purpose was to understand their views and preferences about being involved in health research, and determine how to ensure that the contributions of patients and consumers are better understood, respected and fully utilised.

SHP liaised with patient engagement staff in each of the three Local Health Districts (Sydney, Western Sydney and Northern Sydney) and the Sydney Children’s Hospitals Network (at Westmead) who assisted with identifying the volunteers.

This work resulted in a report and a journal publication, as well as informing next steps.

National Initiatives

Sydney Health Partners is working with several regional, state, territory and national organisations to develop a more coordinated and consistent approach to fostering consumer and community involvement in research. This body of work aims to establish national principles, build shared platforms and facilitate access to tools and resources which will accelerate greater consumer and community involvement.

In 2020, co-leading AHRA's CCI platform alongside the Western Australian Health Translation Network, we have committed, alongside Consumers Health Forum (CHF), to strengthening consumer and community involvement in health research across Australia. Read our position statement.

In 2018, Sydney Health Partners coordinated a national survey of all AHRA Centres to assess current consumer involvement activities, which led to four major recommendations for AHRA that are the focus of current AHRA work.


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