Consumer and Community Involvement Resources

Results of a  consumer engagement exercise across Sydney Health Partners, to ensure that the contribution of patients and consumers in health research is better understood, respected and fully utilised.

The Australian Clinical Trials Alliance Toolkit provides practical advice for researchers and research organisations wishing to conduct patient-centred clinical trials.

In 2020, AHRA and the Consumers Health Forum of Australia jointly published a position statement committing them to strengthening consumer and community involvement in health research.

Designed to encourage consumer involvement in health research - not just as a research participant.

Summary report of Stage 1 work: environmental scan and introductory training from Sydney Health Partners and Health Consumers NSW.

The NHMRC provides a number of resources for researchers to use when involving consumers in health research, and evaluating their involvement efforts.

The statement aims to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research.

The practical handbook for organisations, researchers, consumers and funders, developed by the Western Australian Health Translation Network, provides practical advice about involving consumers in health and medical research, targeted at all four groups.

This SHP report provides an assessment of available tools for measuring the impact of consumer involvement in research.

In 2018, AHRA conducted a national audit about consumer and community involvement in health research.

In 2018, AHRA conducted a national audit about consumer and community involvement in health research.

A detailed guide for researchers stepping through the how-to of involving patients in health research.

This guidance from the National Institute for Health Research summarises what an under-served group is, a roadmap suggesting intervention points to improve inclusion, examples of under-served groups and barriers to inclusion.

An outcome of the workshop held on 31 Oct. 2016 by Health Consumers NSW and Research4Me.

The purpose of this framework is to enable meaningful consumer and community involvement in all levels of cancer control. This framework has been guided by the National Framework for Consumer Involvement in Cancer Control, as well as consultation with a range of consumer and community groups.

SAHMRI is an evidence-based organisation and this Framework is based on the findings of a review of the literature of existing evidence about how best to encourage community participation in research.