Resources to support consumer and community involvement (CCI) in healthcare design and research.
Sydney Health Partners is committed to the genuine involvement of consumers and the community in health and medical research. We are developing a collection of resources to help researchers and consumers alike more meaningfully work together, to the benefit of all.
Results of a consumer engagement exercise across Sydney Health Partners, to ensure that the contribution of patients and consumers in health research is better understood, respected and fully utilised.
Read more of the post Article: Involving Consumers in Health Research - What Do Consumers Say? l
The Australian Clinical Trials Alliance Toolkit provides practical advice for researchers and research organisations wishing to conduct patient-centred clinical trials.
Read more of the post ACTA Toolkitl
In 2020, AHRA and the Consumers Health Forum of Australia jointly published a position statement committing them to strengthening consumer and community involvement in health research.
Read more of the post AHRA and CHF Position Statementl
Designed to encourage consumer involvement in health research - not just as a research participant.
Read more of the post Consumers in Health Research Brochurel
This webinar provides practical strategies and lessons learned from around Australia about involving consumers in the design and delivery of clinical trials.
Read more of the post Consumer Involvement in Clinical Trials Webinarl
Summary report of Stage 1 work: environmental scan and introductory training from Sydney Health Partners and Health Consumers NSW.
Read more of the post Environmental Scan of CCI Activity Across Sydney Health Partnersl
The NHMRC provides a number of resources for researchers to use when involving consumers in health research, and evaluating their involvement efforts.
Read more of the post NHMRC CCI Toolkitl
The statement aims to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research.
Read more of the post NHMRC Statement on CCI in Health and Medical Researchl
The practical handbook for organisations, researchers, consumers and funders, developed by the Western Australian Health Translation Network, provides practical advice about involving consumers in health and medical research, targeted at all four groups.
Read more of the post Practical CCI Handbookl
This SHP report provides an assessment of available tools for measuring the impact of consumer involvement in research.
Read more of the post Report: Assessment of CCI Impactl
SHP has partnered with Health Consumers NSW to deliver joint consumer and research training as an introduction to consumer involvement in health research.
Read more of the post Training for Consumers and Researchers in CCIl
In 2018, AHRA conducted a national audit about consumer and community involvement in health research.
Read more of the post National Audit on CCI Activity: Executive Summaryl
In 2018, AHRA conducted a national audit about consumer and community involvement in health research.
Read more of the post National Audit on CCI Activity: Full Reportl
A detailed guide for researchers stepping through the how-to of involving patients in health research.
Read more of the post Patient Engagement in Health Research: A How-to Guide for Researchersl
This guidance from the National Institute for Health Research summarises what an under-served group is, a roadmap suggesting intervention points to improve inclusion, examples of under-served groups and barriers to inclusion.
Read more of the post Improving inclusion of under-served groups in clinical researchl
An outcome of the workshop held on 31 Oct. 2016 by Health Consumers NSW and Research4Me.
Read more of the post Involving Health Consumers in Health and Medical Research: Enablers and Challenges from a Consumer Perspectivel
The purpose of this framework is to enable meaningful consumer and community involvement in all levels of cancer control. This framework has been guided by the National Framework for Consumer Involvement in Cancer Control, as well as consultation with a range of consumer and community groups.
Read more of the post Cancer Institute NSW Consumer and Community Engagement Frameworkl
SAHMRI is an evidence-based organisation and this Framework is based on the findings of a review of the literature of existing evidence about how best to encourage community participation in research.
Read more of the post A Consumer and Community Engagement Framework for the South Australian Health and Medical Research Institutel
The Australian Health Research Alliance's Consumer and Community Involvement (CCI) Initiative is co-led by Sydney Health Partners and the Western Australian Health Translation Network. It aims to embed the involvement of consumers and the community in health and medical research policy and practice. Work to date has developed a number of resources - including a handbook of practical steps for CCI to guide stakeholders and organisations, a knowledge hub of ideas, knowledge, tools, research and activities in a central online space, and an analysis of tools that assess CCI in health research.
