More than 50 people gathered at the Westmead Education and Conference Centre on July 24 to explore the foundations of genuine research partnership, including what makes consumers research-ready and what makes researchers consumer-ready.

Several researchers highlighted the positive impact consumer involvement is having on their research projects.

Researcher and co-chair of SHP’s Geriatric Clinical Academic Group, Dr Lisa Kouladjian O'Donnell, said consumers can help researchers to think about the unexpected outcomes and impacts of the proposed health intervention.

“From day one, consumers have been part of our research project,” she said. “As a result, three consumers were listed on our latest research paper, and I think it’s amazing that we’ve got to that place.”

Researcher at Westmead Institute for Medical Research, Dr Roshni Sharma, said she has been impressed by the passion of consumers involved in her project.

“It really is a joy to bring that passion into the sometimes dry world of research,” she said. “If I had my time again, I’d have brought our chief investigators and consumers together right at the start of the project.”

Co-chair of Sydney Health Partners’ Consumer Advisory Panel, Diana Trickett, reflected on the skills and experience that are beneficial to consumers who are involved in research.

“Consumers come in all shapes and sizes but we’re learning that having lived experience of healthcare is important - and probably some experience of managing people is helpful too,” she said.

Through panel discussions and interactive sessions, ReConX participants uncovered practical ways to engage meaningfully, co-create resources, and move from interest to involvement.

Insights shared included:

  • Early consumer involvement drives the real-world impact of research
  • From day one, researchers should commit to plain English communications, transparency, and respect for people from diverse backgrounds
  • Building relationships outside group research meetings is crucial for trust and connection
  • One-on-one briefings before and after activities help to bridge health and digital literacy gaps
  • Research projects should aim to have at least two consumer representatives per activity, with a dedicated staff contact to support accessibility and inclusion.
  • Speaking to the workshop, SHP’s Research Director Angela Todd highlighted the growing need for more consumers and researchers to partner in health and medical research.

    “Most of our Consumer Advisory Panel members are supposedly retired - but they are busier than any of us employed people!” she said. “We need more consumers, or we risk burning out the ones we have.  We also need researchers to step forward and open doors”.