Data Sharing Accord
Unlocking the potential of stored health data - safely and easily
Sydney Health Partners' Data Sharing Accord1 makes it easier for researchers to obtain ethics and governance approval to use patient data in their research.
The Accord is an agreement between SHP’s five major partners –Northern Sydney Local Health District, the Sydney Children’s Hospitals Network (at Westmead), Sydney Local Health District, Western Sydney Local Health District and the University of Sydney – to standardise the information required from researchers when they apply for access to de-identified patient data.
The Accord and its complementary Data Sharing Protocol Checklist2 provide common-sense language guidance on the issues researchers need to consider when requesting health data across organisational boundaries, including:
- What information should be supplied around project data field selection and access.
- What information should be supplied to correctly describe the data extraction, transfer and on-going storage processes.
- Advice around de-identification and consent/waiver of consent requirements.
- What permissions are likely to be required during the Site Specific Assessment process and who can grant these.
- Considerations around safe access to newly created research datasets and their analysis.
By working through the Data Sharing Protocol Checklist and ensuring all relevant conditions are met, researchers can expect faster and easier approvals to access de-identified patient data, especially when working across multiple Partner organisations.
Dr Felicity Gallimore. firstname.lastname@example.org
1Sydney Health Partners, 2019. Accord for the Sharing of Health Data across Sydney Health Partners v9.9. Camperdown: Sydney Health Partners.
2Sydney Health Partners, 2019. The Data Sharing Protocol Checklist v3.6. Camperdown: Sydney Health Partners.