Finding Out What Consumers Say
In 2016, Sydney Health Partners conducted focus group discussions with volunteers from our health service partners’ consumer networks. The purpose was to understand their views and preferences about being involved in health research, and determine how to ensure that the contributions of patients and consumers are better understood, respected and fully utilised.
SHP liaised with patient engagement staff in each of the three Local Health Districts (Sydney, Western Sydney and Northern Sydney) and the Sydney Children’s Hospitals Network (at Westmead) who assisted with identifying the volunteers.
This work resulted in a report and a journal publication, as well as informing next steps.
Capacity Building in NSW
Sydney Health Partners has established a strategic partnership with Health Consumers NSW (HCNSW). We are working together to increase the capacity of researchers and consumers to work together within health and medical research.
A scoping review and needs assessment of consumer and community involvement across Sydney Health Partners has informed a series of recommendations about how SHP can foster new connections to guide the development of infrastructure and resources that support wider consumer involvement in health research.
The partnership with HCNSW has also resulted in pilot training sessions for consumers and researchers alike to improve collaboration and better equip both groups to support consumer involvement in health research.