Consumers in Health Research Training
SHP affiliated researchers and NSW consumers are invited to enrol in our free online training course and workshop.
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Consumer and Community Involvement Resources
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Resources to support consumer and community involvement (CCI) in healthcare design and research.
Sydney Health Partners is committed to the genuine involvement of consumers and the community in health and medical research. We are developing a collection of resources to help researchers and consumers alike more meaningfully work together, to the benefit of all.
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Consumer and Community Involvement Webinars
This collaborative webinar series has been successfully running since 2021. Hear consumer voices, and meet researchers and other professionals as they discuss the why and how of involving consumers in clinical trial design and delivery, including helpful tips and lessons learnt. You can access recording of these 90-minute webinars below.Read more of the post Consumer and Community Involvement Webinarsl
Co-Design Kickstarter
The Co-design Kickstarter is a new resource developed by the Community Mental Health, Drug & Alcohol Research Network provides a guide to the co-design of research that draws on the multiple lineages of co-design and the knowledge(s) of people with lived and living experience.
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Guiding Principles, Framework and Language Guide
Sydney Health Partners is collaborating with Health Consumers NSW to help strengthen the involvement of consumers in health research across our partnership. Working with consumer and researcher members of our project steering committee, SHP’s Consumer Advisory Panel and our wider community, we have developed a suite of complementary resources: • Our Guiding Principles outline the ... Read moreRead more of the post Guiding Principles, Framework and Language Guidel
Remuneration and Reimbursement for Consumers in Research
The new Health Consumers NSW 'Remuneration and reimbursement guidelines for consumer involvement in health and medical research' are now available for download.
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Article: Involving Consumers in Health Research - What Do Consumers Say?
Results of a consumer engagement exercise across Sydney Health Partners, to ensure that the contribution of patients and consumers in health research is better understood, respected and fully utilised.
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ACTA Toolkit
The Australian Clinical Trials Alliance Toolkit provides practical advice for researchers and research organisations wishing to conduct patient-centred clinical trials.
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AHRA and CHF Position Statement
In 2020, AHRA and the Consumers Health Forum of Australia jointly published a position statement committing them to strengthening consumer and community involvement in health research.
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Consumers in Health Research Brochure
Designed to encourage consumer involvement in health research - not just as a research participant.
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Environmental Scan of CCI Activity Across Sydney Health Partners
Summary report of Stage 1 work: environmental scan and introductory training from Sydney Health Partners and Health Consumers NSW.
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NHMRC CCI Toolkit
The NHMRC provides a number of resources for researchers to use when involving consumers in health research, and evaluating their involvement efforts.
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NHMRC Statement on CCI in Health and Medical Research
The statement aims to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research.
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Practical CCI Handbook
The practical handbook for organisations, researchers, consumers and funders, developed by the Western Australian Health Translation Network, provides practical advice about involving consumers in health and medical research, targeted at all four groups.
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Report: Assessment of CCI Impact
This SHP report provides an assessment of available tools for measuring the impact of consumer involvement in research.
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National Audit on CCI Activity: Executive Summary
In 2018, AHRA conducted a national audit about consumer and community involvement in health research.
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National Audit on CCI Activity: Full Report
In 2018, AHRA conducted a national audit about consumer and community involvement in health research.
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Patient Engagement in Health Research: A How-to Guide for Researchers
A detailed guide for researchers stepping through the how-to of involving patients in health research.
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Improving inclusion of under-served groups in clinical research
This guidance from the National Institute for Health Research summarises what an under-served group is, a roadmap suggesting intervention points to improve inclusion, examples of under-served groups and barriers to inclusion.
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Involving Health Consumers in Health and Medical Research: Enablers and Challenges from a Consumer Perspective
An outcome of the workshop held on 31 Oct. 2016 by Health Consumers NSW and Research4Me.
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Cancer Institute NSW Consumer and Community Engagement Framework
The purpose of this framework is to enable meaningful consumer and community involvement in all levels of cancer control. This framework has been guided by the National Framework for Consumer Involvement in Cancer Control, as well as consultation with a range of consumer and community groups.
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A Consumer and Community Engagement Framework for the South Australian Health and Medical Research Institute
SAHMRI is an evidence-based organisation and this Framework is based on the findings of a review of the literature of existing evidence about how best to encourage community participation in research.
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Australian Health Research Alliance Resources
The Australian Health Research Alliance's Consumer and Community Involvement (CCI) Initiative is co-led by Sydney Health Partners and the Western Australian Health Translation Network. It aims to embed the involvement of consumers and the community in health and medical research policy and practice. Work to date has developed a number of resources - including a handbook of practical steps for CCI to guide stakeholders and organisations, a knowledge hub of ideas, knowledge, tools, research and activities in a central online space, and an analysis of tools that assess CCI in health research.
